Evidence shows that to create a high-quality health care system, the family perspective must be actively pursued and incorporated at all levels -- direct care, organizational design and governance, and policymaking. A new fact sheet outlines the value of family engagement and the barriers that prevent its implementation, along with recommendations for improvement.
A study from the National Health Law Program (NHeLP) offers short- medium- and long-term recommendations on how to improve access to mental health services for children with special health care needs (CSHCN) in California.
Researchers interviewed 23 national experts on children with medical complexity to better understand population health for these children. They developed five themes that characterize this group of children and their families, concluding that measuring population health for them is challenging but necessary.
Social determinants of health are the family and community factors that affect children's health and well being. Edward Schor, MD, addresses how the relationship between social determinants of health and the health care system impacts children's health and well being.
In 2014, a national group of experts released a core set of standards for improving systems of care for children and youth with special health care needs. A newly updated version streamlines, simplifies, and updates those standards to encourage readability and ease of use.
The family perception of care integration is essential in identifying opportunities to improve processes of care coordination and care management. This webinar introduced a tool developed at Boston Children’s Hospital to measure how families experience integration of care for their children with special health care needs.
A new report from Public Counsel documents the persistence of a longstanding issue in California—disparities in purchase of services for ethnic and racial groups served by the state's 21 Regional Centers.
Pediatric patients and their families rountinely should have the opportunity to give feedback on the health services they receive, and should have their feedback thoughtfully considered by providers, says Edward L. Schor, MD.