Hear from two statewide projects – a parent leadership training program and a hospital learning collaborative – that are integrating families as equal partners in addressing system issues. They discuss what it really takes to foster an effective and sustainable collaboration.
The California Children’s Services program is the linchpin for many families in obtaining vital durable medical equipment and supplies. However, a complicated health system often results in delays and denials that can affect the health of children with complex conditions. The National Health Law Program has created a guide to assist advocates in guiding families through the complex system.
This webinar on family needs for home health care and potential workforce and policy solutions features the perspectives of a parent advocate, a home health care administrator, a pediatrician, and a state official.
Medicaid services for children with special health care needs (CSHCN) are provided inconsistently across the country, often with negative outcomes for children and families. This new report from Manatt Health highlights eight strategies that state Medicaid agencies can implement to improve access to services and health care for CSHCN covered by Medicaid.
Family burden. Medical complexity. These commonly used terms can hold different meaning for parents of CSHCN and the professionals who serve them, with consequent impact on how services are provided. Meg Comeau, who combines roles as both parent and professional, suggests that a reexamination is warranted.
Edward Schor, MD, who for the past eight years has led the Foundation’s work to improve the system of care for children with special health care needs, will retire July 2. Here he reflects on the Foundation’s progress and how best to continue efforts to create a system that works for children and families.
An analysis of workforce gaps, payment models, and policy challenges unique to home health care for children and youth with medical complexity, including legal challenges brought by families because of home nursing shortages. The authors propose a portfolio of solutions to address the current failures.
A new report from Public Counsel confirms the continued presence of a longstanding issue in California—disparities in purchase of services for ethnic and racial groups served by the state's 21 regional centers.
Like most 10-year-olds, Mia Vasquez loves to spend the day at a playground. Unlike most, Mia requires accessible play structures, which are not available near her home. Her parents felt frustrated by the distances they had to drive, and decided to take on the challenge of persuading their home town to construct an accessible playground. Through Project Leadership, the Family Voices of California’s advocacy training program, they developed the skills to mobilize the community support and funding needed to make Mia’s dream playground a reality. Read about their journey.