The California Research Bureau (CRB) investigated the extent to which the state's child-serving departments and agencies incorporate meaningful input from caregivers and youth in policymaking. The CRB research shows that California state government includes some bright spots of meaningful family engagement, but they are sporadic and not common practice throughout all child-serving agencies.
The National Care Coordination Standards for Children and Youth with Special Health Care Needs (CYSHCN) outline the core, system-level components of high-quality care coordination for CYSHCN. These standards are designed to help state officials and other stakeholders develop and strengthen high-quality care coordination for children with the goal of identifying and assessing the need for care coordination, engaging families in the care coordination process, building a strong and supportive care coordination workforce, and developing team-based communication processes to better serve children and families.
Eight years after their launch in 2012, the National Standards for Systems of Care for Children and Youth with Special Health Care Needs are becoming increasingly influential, including being used as a framework in multiple states to develop policies and to write managed care contracts.
The California Community Care Coordination Collaborative (5Cs), brought together agencies and families to identify and address local issues that arise from the painfully fragmented systems of care that California’s children with special health care needs and their families must navigate.
Issues Research, Inc. evaluated the influence of the National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) on health care systems. The report synthesizes the views of 50 stakeholders to describe the uptake and influence of the National Standards as well as remaining opportunities to promote their use among key audiences.
Being discharged from the hospital is a vulnerable time for families and caregivers of children with special health care needs (CSHCN). Appropriate resources and support are essential for care at home and can prevent complications or readmission. The California-based Nurse-led Discharge Learning (CANDLE) Collaborative brings together interdisciplinary clinicians to improve discharge care delivery for CSHCN. Learn about two new discharge practices: closed-loop medication reconciliation and tailored medication teaching, and multidisciplinary discharge rounds with early discharge notification. Speakers share how these innovative practices can be integrated into existing clinical workflows.
To assist state Medicaid agencies and MCOs in improving access to recommended pediatric-to adult health care transition services for their enrollees, this report offers specific options for managed care contract (MCC) language that can be incorporated into standard and specialty contracts.
A set of one-pagers that highlight the five most utilized National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) domains. Each overview defines the core component within the system of care, provides relevant quality measures, and examples of state implementation.