The Lucile Packard Foundation for Children's Health is featured in a Grantmakers in Health Bulletin, a forum for health grantmakers to share information and insights. The article describes our advocacy priorities for children and families, including advancing care coordination and planning; supporting families in self-management and advocacy; and identifying strategies for financing the care of children with special health care needs.
National and state reforms to health-care delivery – largely designed to improve care for older Americans – may inadvertently exacerbate health disparities for the youngest Americans. Nowhere is this danger greater than for children with complex health conditions who live at or near poverty.
In summer 2012, the Foundation surveyed members of the California Advocacy Network for Children with Special Health Care Needs regarding the issues most important for the Network to address and the kinds of tactics that were mostly like to be successful.
Results from a wide-ranging survey that asked California parents how they view their children's health and well being provide a wealth of current data that can inform and support the work of organizations across California that serve kids.
In California, about 15 percent of children had special health care needs in 2007 — chronic physical, developmental, or behavioral conditions that require more than routine health and related services. A report commissioned by the Foundation documents areas in which the state is lagging on providing high-quality services for these children and their families.
The first-ever "California Index of Child and Youth Well Being" shows a consistent pattern of improvement in how children have fared over the last decade, but warns that the present economic recession could undermine and possibly even reverse those gains.
This 2009 report provides a comprehensive overview of California’s health care system and related systems, including publicly and privately funded services; analysis of the strengths and gaps within the current service systems; and an assessment of the impact on children and families. The report offers recommendations for addressing current deficiencies.