Being discharged from the hospital is a vulnerable time for families and caregivers of children with special health care needs (CSHCN). Appropriate resources and support are essential for care at home and can prevent complications or readmission. The California-based Nurse-led Discharge Learning (CANDLE) Collaborative brings together interdisciplinary clinicians to improve discharge care delivery for CSHCN. Learn about two new discharge practices: closed-loop medication reconciliation and tailored medication teaching, and multidisciplinary discharge rounds with early discharge notification. Speakers share how these innovative practices can be integrated into existing clinical workflows.
To assist state Medicaid agencies and MCOs in improving access to recommended pediatric-to adult health care transition services for their enrollees, this report offers specific options for managed care contract (MCC) language that can be incorporated into standard and specialty contracts.
A set of one-pagers that highlight the five most utilized National Standards for Systems of Care for Children and Youth with Special Health Care Needs (CYSHCN) domains. Each overview defines the core component within the system of care, provides relevant quality measures, and examples of state implementation.
An independent evaluation of the California Community Care Coordination Collaborative (5Cs), a program that brings together agencies and families to identify and address local issues that arise from the painfully fragmented systems of care that California’s children with special health care needs and their families must navigate.
Mental illness is an increasingly common condition among California’s children, yet the state lacks a coherent system of care. In 2018, the California Children’s Hospital Association (CCHA) convened a workgroup to discuss this emerging crisis, and now has released a report offering recommendations for action. CCHA President & CEO Ann-Louise Kuhns, discusses the report and what needs to be done.
Family Voices developed an assessment tool for measuring family engagement in health care systems and created supporting materials to assist in the recruitment of and meaningful engagement with families to improve systems of care, programs, and policies.
Hear from two statewide projects – a parent leadership training program and a hospital learning collaborative – that are integrating families as equal partners in addressing system issues. They discuss what it really takes to foster an effective and sustainable collaboration.
The California Children’s Services program is the linchpin for many families in obtaining vital durable medical equipment and supplies. However, a complicated health system often results in delays and denials that can affect the health of children with complex conditions. The National Health Law Program has created a guide to assist advocates in guiding families through the complex system.
This webinar on family needs for home health care and potential workforce and policy solutions features the perspectives of a parent advocate, a home health care administrator, a pediatrician, and a state official.
