Like most 10-year-olds, Mia Vasquez loves to spend the day at a playground. Unlike most, Mia requires accessible play structures, which are not available near her home. Her parents felt frustrated by the distances they had to drive, and decided to take on the challenge of persuading their home town to construct an accessible playground. Through Project Leadership, the Family Voices of California’s advocacy training program, they developed the skills to mobilize the community support and funding needed to make Mia’s dream playground a reality. Read about their journey.
It’s probably next to impossible to compile a complete list of services required by children with complex conditions and their families. However, this new classified grouping of services may be useful in care mapping, care planning, creating resource databases, and developing referral systems.
Learn about an innovative methodology using system-level data to identify children with health complexity, that is based on medical and social complexity, and how it is improving quality of care in Oregon.
When it comes to quality improvement efforts in health care, nurses traditionally have been “brought along for the ride.” A new project aims to put nurses in the driver’s seat. An eight-hospital coalition brings together a multidisciplinary team at each hospital to create and test innovative discharge planning initiatives. Each team is led by a nurse, with the goal of establishing nurses as leaders with the confidence to generate change.
Children with health complexity face unique medical and social factors that impact their health and engagement of health care services. Health systems play an important role in addressing both factors to build health and resilience.
A wide range of issues must be addressed to improve the system of care for children with special health care needs.Staff members of the Lucile Packard Foundation for Children’s Health presented an overview of topics that are a priority and related work that currently is under way to improve the system.
Children with medical complexity (CMC) face unique medical and social factors that affect their health and access to health care services. Health systems play an important role in addressing both factors. The Oregon Pediatric Improvement Partnership and Kaiser Permanente Northwest have joined forces to share their approaches to using system- and practice-level data to better identify appropriate care coordination and health management supports for CMC.
Though most commonly associated with adults, chronic care management is becoming increasingly important in pediatric practices as the number of children with complex chronic conditions continues to grow. As the need for smooth transition of these patients from pediatric to adult care is increasing, a new analysis sheds some light on the differences between pediatric and adult internal medicine practices.
“Chronic” is a way of providing health care that is too often limited to patients with chronic medical conditions. In a new issue brief, Edward Schor, MD, proposes a definition of chronic care and describes how it should be the care model used not only for children with special health care needs but also for well-child care. Both are intended to promote lifelong health.
Health care providers, payers, and systems serving children, youth and families increasingly focus on family engagement as a strategy to improve health care delivery, enhance consumer and provider satisfaction, and reduce costs. Assessing how well an organization or agency is engaging families is a critical step in achieving these goals. Learn about a framework for assessing family engagement in systems change, models of success, and discover common barriers to incorporating meaningful family engagement in systems-level initiatives.