• Insights

    Meet Susan Tom, the Super Mom of 11 Children with Special Needs

    Ten years ago, My Flesh and Blood, a documentary about Fairfield, California-based Susan Tom and her 11 children with special needs, was broadcast. Since then, her home has undergone an Extreme Makeover, and her children are now adults. Read an interview with Susan discussing the transition of her kids to adult health care and making legal and financial preparations for their continued well-being.

  • Event and Webinar Recaps

    Take Action on Care Coordination

    Advocates, family leaders, policymakers, and other stakeholders joined us for a first step in building a national movement to promote care coordination policies and payment options that better serve children with special health care needs, families, and care providers.

  • Insights

    CCS Medical Directors Tackle Thorny Issues

    If you’re familiar with the California Children’s Services (CCS) program, you’ve probably heard the story. A family moves from one county to another and their child’s CCS coverage changes or vanishes. A statewide group of CCS medical directors is working to fix that, and to encourage other improvements in the CCS program.

  • Insights

    CCS Redesign: Former SF Medical Director Weighs Pros, Cons

    Dr. David Hayashida served as the medical director of San Francisco City and County’s California Children’s Services (CCS) office between 1995 and 2016. He shares his reflections on the 20 years he spent serving the CSHCN community, and offers his advice on the future of the CCS program.

  • Research & Reports

    An Experiment in Local Care Coordination: Lessons Learned from Phase I of the California Community Care Coordination Collaborative

    In 2013, the Foundation launched the California Community Care Coordination Collaborative (5Cs) to test whether agencies serving children with special health care needs and their families could be brought together to improve local care coordination and promote needed system changes. A new report takes a look at the results of the first 18 months of the project.

  • Journal Articles

    The Impact of Medical Homes on Hospital Readmission and ED Visits for CSHCN

    Little is known about the relationship between receiving primary care in a medical home and unplanned hospital readmissions and emergency department visits among children with special health care needs (CSHCN). A new study, published in the journal Pediatrics, sheds lights on this issue.

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