There are a variety of approaches that states can use to finance care coordination services for CYSHCN through Medicaid. Financing of care coordination is critical to the quality and sustainability of these services. This brief highlights key components and themes across five states’ approaches to financing care coordination.
This is the final seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Cara Coleman, Dr. Peter Rosenbaum, and Treeby Brown discuss patient engagement in clinical research.
An updated report by Public Counsel outlines persistent service funding disparities between racial and ethnic groups of children in California’s regional center system. The report evaluates the outcomes of a disparity reduction program established by the state in 2016 and urges the state’s legislative and executive administration leadership to take action on the identified recommendations for addressing the system’s ongoing problems.
This is the ninth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Kathy McClelland, Katy Peck, and Dr. Christpher Russell discuss aspiration in the care of children with medical complexity.
A team of researchers led by the Institute for Patient- and Family-Centered Care investigated the effects of the COVID-19 pandemic on Patient and Family Advisory Councils (PFACs) including how PFACS adapted operations and the intersection with issues related to PFAC diversity, equity, and inclusion.
This fact sheet answers key questions about access to care through California Children’s Services during COVID-19. It also provides information on free legal assistance. The fact sheet is available in English, Chinese, and Spanish.
No validated tools currently exist to measure pediatric home health care quality. This article outlines the development and testing of PediHome, a content-valid family-reported survey measure of home health care quality for children with medical complexity. PediHome can be used to identify deficits in timely access to care, overall home health care quality, and specific aspects such as confidence in nursing care provided.
This is the eighth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Kate Robinson of Family Voices will be joined by Kate Holler, Sarah Perkins, Dr. Caroline Okorie, and Dr. Shelly Weiss to discuss sleep.
This is the seventh seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Dr. Eyal Cohen will be joined by Sarah Carlson, Kasey Dudley, Dr. James Feinstein, and Luke Orth to discuss polypharmacy.
Children and youth with special health care needs (CYSHCN) have a range of medical, educational, and support service needs to achieve optimal health and wellness. Principles of care for CYSHCN have been well described, but the literature is lacking particularly on implementation and integration of care across different settings and systems. The authors identify four primary areas of investigation that could further understanding of how to adopt and spread principles of care for CYSHCN.
