When access to assessment and routine care by a pediatric specialist is delayed, patients may receive inappropriate or insufficient treatment, experience complications, and have potentially avoidable emergency department visits and hospitalizations. This fact sheet describes the current population of children with medical complexity in California and summarizes the status of access to care from pediatric subspecialists compared to data collected in 2019.
Transition from pediatric to adult health care is a critical component of care for youth and young adults, especially those with chronic conditions, but few families receive guidance on this process from providers. This article provides a comprehensive framework for health care transition, which identifies gaps and proposes measures to help improve this process. Additional attention must be paid to measuring the quality of transition to stimulate practice improvement and ensure accountability.
The Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) benefit is part of the federal Medicaid law that requires each state to provide medically necessary services to children under 21 who are enrolled in Medicaid. However, many families are unaware of EPSDT and may not know how to access services for which their children are eligible. This fact sheet helps answer common questions about EPSDT and provides the name of the program in each state.
The Early and Periodic Screening, Diagnostic, and Treatment (EPSDT) benefit is part of the federal Medicaid law that requires each state to provide medically necessary services to children under 21 who are enrolled in Medicaid. However, many families are unaware of EPSDT and may not know how to access services for which their children are eligible. This fact sheet answers questions about how EPSDT applies in home health care for children.
The Family Health Outcomes Project at the University of California San Francisco conducted a case study to examine what was and was not accomplished following previous needs assessments of California Children’s Services, one of the programs funded in part by Title V. The author offers strategies and recommendations to ensure that progress is made on the priorities raised by stakeholders who participate in future needs assessment cycles.
The Family Voices Family Engagement in Systems Assessment Tool (FESAT), available in English and Spanish, can be used for planning, assessing, and improving family engagement in systems-level initiatives. This interview describes the experience of implementing this approach in a statewide Title V program and offers recommendations for use.
Health complexity is a concept that considers both a child’s medical and social complexity. For health systems, identifying and supporting children with health complexity directly aligns with efforts to eliminate health disparities. This webinar described how health systems can identify children with health complexity and provided actionable strategies and models to use this information to improve services and supports for families. Presenters shared real world examples and recommendations based on technical assistance provided to State Medicaid and Children’s Health Insurance Program (CHIP) agencies and health systems over the last five years. Additionally, a panel of health system leaders who have received technical assistance shared their reflections and learnings.
This brief applies health complexity, a concept that considers both a child’s medical and social complexity, to address health disparities. It includes recommendations on how state agencies and health systems can develop and use health complexity data to ensure the most vulnerable children are at the center of health system redesign.
Researchers explored the prevalence and characteristics of Patient and Family Advisory Councils (PFACs), investigated the effects of the COVID-19 pandemic on PFACs, and the intersection with issues related to PFAC diversity, equity, and inclusion. This article focuses on recruitment, retention, and engagement of patient family advisors with diverse perspectives and backgrounds. Findings from this study help inform strategies to promote diversity, equity, and inclusion within PFACs across hospital systems.
The unwinding of the COVID-19 public health emergency presents a challenge for many families whose children will now need to undergo a Medicaid eligibility redetermination. Cara Coleman, director of public policy and advocacy at Family Voices, shares her perspective on the challenges ahead and how to advocate for CYSHCN and their families.