• Private Coverage Under California’s Affordable Care Act: How Will Children with Special Health Care Needs Fare?

    High-end “platinum” coverage or basic catastrophic? In just a few months, many families of children with special health care needs must choose their level of health care coverage for 2014 under the Covered California Health Benefit Exchange. To make informed decisions, families will need to understand the benefits and markedly different cost-sharing requirements of the various products to be offered under the exchange plan. In this issue brief, Peggy McManus and Harriette Fox, of The National Alliance to Advance Adolescent Health, assesses the strengths and weaknesses of the proposed plan, and notes issues of particular concern for families of children with some special health care needs.

  • Habilitative Services Under the ACA: What States Should Consider

    Habilitative services, which help a person keep, learn or improve skills and functioning for daily living, are essential for many children with special health care needs. Under the Affordable Care Act, states will play a primary role in determining which services are covered. This paper outlines key factors states should keep in mind as they make their decisions.

  • Habilitative Services Coverage for Children Under the Essential Health Benefit Provisions of the Affordable Care Act

    Sara Rosenbaum, the Harold and Jane Hirsh Professor of Health Law and Policy at the George Washington University School of Public Health and Health Services, analyzes how habilitative services may be covered under the Essential Health Benefits Provisions of the Affordable Care Act.  The author notes that states will play a primary role in determining Essential Health Benefits, and that establishing state standards for health insurance plans sold in the individual and small group markets will be key to health policy for children with disabilities.

  • Assuring Children’s Access to Pediatric Subspecialty Care in California

    This policy note, prepared by the UCLA Center for Health Policy Research and funded by the Lucile Packard Foundation for Children’s Health, explores disparities in access to pediatric subspecialty care in California by insurance coverage, geographic location, race/ethnicity, and language. The paper proposes recommendations to ensure adequate access to pediatric subspecialty care.

  • Children with Special Health Care Needs in California: A Profile of Key Issues

    Compared to children in other states, California’s children with special health care needs receive care that is less coordinated, less family-centered, and fails to meet many of the key quality indicators prescribed by the Federal Maternal and Child Health Bureau, according to this new analysis of the  2009/10 National Survey of Children with Special Health Care Needs.

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