Many children with medical complexity receive care in home and community-based settings. These services may be covered using Medicaid waivers. Authors of the article evaluated how states use these waivers to provide coverage to children with medical complexity and determine services offered. The findings indicate great variability in how states interpret scope of coverage and services and how this variability could impact child and family outcomes.
In many states, home and community-based services are covered for children with medical complexity through Medicaid waivers. Authors of the article developed a systematic and reproducible approach to evaluate the waivers for overall coverage of children with medical complexity in different states.
Family burden. Medical complexity. These commonly used terms can hold different meaning for parents of CSHCN and the professionals who serve them, with consequent impact on how services are provided. Meg Comeau, who combines roles as both parent and professional, suggests that a reexamination is warranted.
Edward Schor, MD, who for the past eight years has led the Foundation’s work to improve the system of care for children with special health care needs, will retire July 2. Here he reflects on the Foundation’s progress and how best to continue efforts to create a system that works for children and families.
An analysis of workforce gaps, payment models, and policy challenges unique to home health care for children and youth with medical complexity, including legal challenges brought by families because of home nursing shortages. The authors propose a portfolio of solutions to address the current failures.
A new report from Public Counsel confirms the continued presence of a longstanding issue in California—disparities in purchase of services for ethnic and racial groups served by the state's 21 regional centers.
Like most 10-year-olds, Mia Vasquez loves to spend the day at a playground. Unlike most, Mia requires accessible play structures, which are not available near her home. Her parents felt frustrated by the distances they had to drive, and decided to take on the challenge of persuading their home town to construct an accessible playground. Through Project Leadership, the Family Voices of California’s advocacy training program, they developed the skills to mobilize the community support and funding needed to make Mia’s dream playground a reality. Read about their journey.
It’s probably next to impossible to compile a complete list of services required by children with complex conditions and their families. However, this new classified grouping of services may be useful in care mapping, care planning, creating resource databases, and developing referral systems.
Learn about an innovative methodology using system-level data to identify children with health complexity, that is based on medical and social complexity, and how it is improving quality of care in Oregon.