Children with special health care needs (CSHCN) fare better when they are cared for in a "medical home," yet only a small percentage receive such care. In a series of focus groups and interviews, California pediatricians and other key informants discuss their views on caring for CSHCN, and their ideas about how system changes could enhance their willingness to provide a medical home.
Nearly half of children with special health care needs rely on Medicaid. Edwin Park of the Center on Budget and Policy Priorities provides an analysis of the consequences of changing Medicaid to a block grant program.
Researchers at Boston Children's Hospital, Harvard Medical School, and Harvard T.H. Chan School of Public Health have created the Pediatric Integrated Care Survey (PICS), a validated tool for measuring a family's experience with the integration of health care and related services for children and youth with special health care needs. Read more and get access to the tool.
Thousands of people have visited our "Super Parents" photography project since its launch last month. Here we share some behind-the-scenes moments to explain how and why we produced this project, which was shot by Pulitzer Prize-winning photographer, Deanne Fitzmaurice.
Deanne Fitzmaurice, a Pulitzer Prize-winning photographer, shadowed 10 families living throughout California - from rural farms to large urban centers to the suburbs surrounding Silicon Valley - who provide care for their children with special needs every day and every night.
The mother of an adult son with autism reflects on the North Miami police shooting of a therapist who was trying to help a young man with autism. Law enforcement officers must be trained to protect the entire population, she says.
What does it take to create and implement an effective, family-centered plan of care for a child with special health care needs? Two expert speakers discussed their approaches to the process of care planning in two very different settings—Children's Hospital of Philadelphia and a small private practice in Vermont.
Diane Stonecipher’s son, now 24, is blind, quadriplegic, profoundly delayed, and has been in hospice twice. Yet he doesn’t qualify for nursing care at home. Stonecipher, herself a nurse, says it’s time to train a new kind of workforce for in-home and residential care.
On September 21, ABC will premiere its new sitcom, Speechless, about a family with a child who has special needs. The show stars Micah Fowler, a young actor who in real life and in the show has cerebral palsy, and Minnie Driver, who plays the mother of Fowler’s character, JJ. We talked to Melvin Mar, one of the show’s executive producers, to get a behind-the-scenes look at Speechless.
