As manager of Help Me Grow Orange County, Rebecca Hernandez has for years helped connect families to health professionals and support services when they have concerns about their children’s health and development.
What would care coordination look like if families received support and training for their role as principal care coordinators for their child with special health care needs? A new issue brief from the Lucile Packard Foundation for Children’s Health proposes a series of attributes that would characterize true family-centered care coordination.
High-end “platinum” coverage or basic catastrophic? In just a few months, many families of children with special health care needs must choose their level of health care coverage for 2014 under the Covered California Health Benefit Exchange. To make informed decisions, families will need to understand the benefits and markedly different cost-sharing requirements of the various products to be offered under the exchange plan. In this issue brief, Peggy McManus and Harriette Fox, of The National Alliance to Advance Adolescent Health, assesses the strengths and weaknesses of the proposed plan, and notes issues of particular concern for families of children with some special health care needs.
Habilitative services, which help a person keep, learn or improve skills and functioning for daily living, are essential for many children with special health care needs. Under the Affordable Care Act, states will play a primary role in determining which services are covered. This paper outlines key factors states should keep in mind as they make their decisions.