An independent evaluation of the California Community Care Coordination Collaborative (5Cs), a program that brings together agencies and families to identify and address local issues that arise from the painfully fragmented systems of care that California’s children with special health care needs and their families must navigate.
Mental illness is an increasingly common condition among California’s children, yet the state lacks a coherent system of care. In 2018, the California Children’s Hospital Association (CCHA) convened a workgroup to discuss this emerging crisis, and now has released a report offering recommendations for action. CCHA President & CEO Ann-Louise Kuhns, discusses the report and what needs to be done.
Family Voices developed an assessment tool for measuring family engagement in health care systems and created supporting materials to assist in the recruitment of and meaningful engagement with families to improve systems of care, programs, and policies.
Hear from two statewide projects – a parent leadership training program and a hospital learning collaborative – that are integrating families as equal partners in addressing system issues. They discuss what it really takes to foster an effective and sustainable collaboration.
The California Children’s Services program is the linchpin for many families in obtaining vital durable medical equipment and supplies. However, a complicated health system often results in delays and denials that can affect the health of children with complex conditions. The National Health Law Program has created a guide to assist advocates in guiding families through the complex system.
This webinar on family needs for home health care and potential workforce and policy solutions features the perspectives of a parent advocate, a home health care administrator, a pediatrician, and a state official.
Medicaid services for children with special health care needs (CSHCN) are provided inconsistently across the country, often with negative outcomes for children and families. This new report from Manatt Health highlights eight strategies that state Medicaid agencies can implement to improve access to services and health care for CSHCN covered by Medicaid.
Family burden. Medical complexity. These commonly used terms can hold different meaning for parents of CSHCN and the professionals who serve them, with consequent impact on how services are provided. Meg Comeau, who combines roles as both parent and professional, suggests that a reexamination is warranted.
Edward Schor, MD, who for the past eight years has led the Foundation’s work to improve the system of care for children with special health care needs, will retire July 2. Here he reflects on the Foundation’s progress and how best to continue efforts to create a system that works for children and families.