• Research & Reports

    Health Systems Strategies to Ensure a Focus on Children with Health Complexity

    This brief applies health complexity, a concept that considers both a child’s medical and social complexity, to address health disparities. It includes recommendations on how state agencies and health systems can develop and use health complexity data to ensure the most vulnerable children are at the center of health system redesign.

  • Journal Articles

    The Intersection of Diversity, Equity, and Inclusion with Pediatric Patient and Family Advisory Councils

    Researchers explored the prevalence and characteristics of Patient and Family Advisory Councils (PFACs), investigated the effects of the COVID-19 pandemic on PFACs, and the intersection with issues related to PFAC diversity, equity, and inclusion. This article focuses on recruitment, retention, and engagement of patient family advisors with diverse perspectives and backgrounds. Findings from this study help inform strategies to promote diversity, equity, and inclusion within PFACs across hospital systems.

  • Event and Webinar Recaps

    Proceedings from the National Forum on Care Coordination for CYSHCN

    The National Academy for State Health Policy convened a national forum  to discuss innovations, strategies, and opportunities to improve high-quality, equitable care coordination for children and youth with special health care needs, with particular focus on integrated care and the care coordination workforce.

  • Research & Reports

    Working Together for System Improvement: Orange County Whole Child Model

    The Orange County Care Collaborative for Kids (OCC3 for Kids), a multi-agency, cross-sector collaborative working to improve systems of care for children with special health care needs, explored the impact of the Whole Child Model (WCM) transition for families in Orange County, CA.

  • Fact Sheets

    Helping Parents Navigate the Whole Child Model

    A guide developed to assist parents and caregivers with navigation of the Whole Child Model (WCM) program in Orange County, CA. This resource provides an overview of the systems serving WCM children and families and identifies sources for a range of services and supports, including California Children’s Services, CalOptima (Orange County’s Medi-Cal Managed Care Plan), CalOptima Health Networks, providers, and pharmacies. 

  • Journal Articles

    Lagging Coverage for Mental Health Services Among Children and Adolescents through Home and Community-based Medicaid Waivers

    Many states cover mental health home and community‐based services (HCBS) for youth through Medicaid waivers. Authors of the article evaluated how states are covering mental health services using Medicaid waivers and compared this to waivers being used to cover services for other pediatric conditions. The findings indicate broad variability in waiver eligibility, transition plans, services covered, and waitlists across populations of youth covered by waivers. 


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