• Insights

    Parent Leaders Bring Their Daughter’s Playground Dream to Life

    Like most 10-year-olds, Mia Vasquez loves to spend the day at a playground. Unlike most, Mia requires accessible play structures, which are not available near her home. Her parents felt frustrated by the distances they had to drive, and decided to take on the challenge of persuading their home town to construct an accessible playground. Through Project Leadership, the Family Voices of California’s advocacy training program, they developed the skills to mobilize the community support and funding needed to make Mia’s dream playground a reality. Read about their journey.

  • Insights

    Nurses Taking Lead Role in Improving Pediatric Hospital Discharge

    When it comes to quality improvement efforts in health care, nurses traditionally have been “brought along for the ride.” A new project aims to put nurses in the driver’s seat. An eight-hospital coalition brings together a multidisciplinary team at each hospital to create and test innovative discharge planning initiatives. Each team is led by a nurse, with the goal of establishing nurses as leaders with the confidence to generate change.

  • Event and Webinar Recaps

    Current Issues Facing CSHCN and Their Families

    A wide range of issues must be addressed to improve the system of care for children with special health care needs.Staff members of the Lucile Packard Foundation for Children’s Health presented an overview of topics that are a priority and related work that currently is under way to improve the system.

  • Research & Reports

    Identifying and Serving Children with Health Complexity: Spotlight of Efforts to Develop and Pilot the Kaiser Permanente Northwest Pediatric Care Together Program

    Children with medical complexity (CMC) face unique medical and social factors that affect their health and access to health care services. Health systems play an important role in addressing both factors. The Oregon Pediatric Improvement Partnership and Kaiser Permanente Northwest have joined forces to share their approaches to using system- and practice-level data to better identify appropriate care coordination and health management supports for CMC.

  • Issue Briefs

    Survey Compares Adult and Pediatric Chronic Condition Management in Primary Care Practices

    Though most commonly associated with adults, chronic care management is becoming increasingly important in pediatric practices as the number of children with complex chronic conditions continues to grow. As the need for smooth transition of these patients from pediatric to adult care is increasing, a new analysis sheds some light on the differences between pediatric and adult internal medicine practices.

  • Issue Briefs

    The Future of Pediatrics: Redefining Chronic Care

    “Chronic” is a way of providing health care that is too often limited to patients with chronic medical conditions. In a new issue brief, Edward Schor, MD, proposes a definition of chronic care and describes how it should be the care model used not only for children with special health care needs but also for well-child care. Both are intended to promote lifelong health.

  • Event and Webinar Recaps

    A New Approach to Assessing Family Engagement in Health Care Systems

    Health care providers, payers, and systems serving children, youth and families increasingly focus on family engagement as a strategy to improve health care delivery, enhance consumer and provider satisfaction, and reduce costs. Assessing how well an organization or agency is engaging families is a critical step in achieving these goals. Learn about a framework for assessing family engagement in systems change, models of success, and discover common barriers to incorporating meaningful family engagement in systems-level initiatives.

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