Habilitative services, which help a person keep, learn or improve skills and functioning for daily living, are essential for many children with special health care needs. Under the Affordable Care Act, states will play a primary role in determining which services are covered. This paper outlines key factors states should keep in mind as they make their decisions.
Yvette Baptiste, executive director of the Eastern Los Angeles Family Resource Center, wants to help parents avoid some of the frustrations she faced with her own children with special health care needs.
Sara Rosenbaum, the Harold and Jane Hirsh Professor of Health Law and Policy at the George Washington University School of Public Health and Health Services, analyzes how habilitative services may be covered under the Essential Health Benefits Provisions of the Affordable Care Act. The author notes that states will play a primary role in determining Essential Health Benefits, and that establishing state standards for health insurance plans sold in the individual and small group markets will be key to health policy for children with disabilities.
Improving the system of care for children with special health care needs is a goal of the Lucile Packard Foundation for Children’s Health. To provide a basis for this work, the Foundation convened dozens of experts and asked them to imagine a reconfigured system that would produce optimal health outcomes for children and families.
The idea of a medical home was conceived by the American Academy of Pediatrics as a way to assure that children, particularly those with special health care needs, are able to obtain high quality care in a fragmented care system.
The authors combine two approaches to improving medical care for children -- the medical home and “Triple Aim” – and outline a “Triple Aim Medical Home” as a way for pediatric practices to improve care and lower health care costs.
The Lucile Packard Foundation for Children’s Health co-sponsored a briefing for California lawmakers regarding how the state health care system functions for children with special health care needs (CSHCN) and their families.
This policy note, prepared by the UCLA Center for Health Policy Research and funded by the Lucile Packard Foundation for Children’s Health, explores disparities in access to pediatric subspecialty care in California by insurance coverage, geographic location, race/ethnicity, and language. The paper proposes recommendations to ensure adequate access to pediatric subspecialty care.
In July 2012, about 350 philanthropists and child health experts congregated in Aspen, CO, for The Aspen Children's Forum: Investing in Children's Health and Well Being. This first-of-its-kind gathering focused on the provocative question, What role can we play in facilitating the transformation of the health and well being of children in North America over the next 20 years?