• The Care Coordination Conundrum and Children and Youth with Special Health Care Needs

    Care coordination almost always tops the list of services desired by families of children with special health care needs. Yet agreement is lacking not only on the definition of care coordination but also on the best methods of financing this much-needed benefit. A new report from the Catalyst Center, with support from the Lucile Packard Foundation for Children's Health, tackles the thorny questions of what care coordination is, who should receive it, who should provide it, and how it should be financed.

  • Children's Health Programs in California: Promoting a Lifetime of Health and Well-Being

    As the "May revise" of the state budget gets under way, the California Budget and Policy Center has released a report on the size and scope of the state's public health care coverage and programs for children. The study, funded by the Lucile Packard Foundation for Children's Health, also notes key opportunities and challenges the state faces in promoting children's health. A companion piece provides a timeline of major policy choices made in the past several years that have shaped the state's health system for children.

  • ITUP: Children’s Health Coverage Under the ACA

    This series of issue briefs, prepared by the Insure the Uninsured Project and funded by the Lucile Packard Foundation for Children’s Health, examines the impact of the Affordable Care Act on health insurance coverage for children in California, and offers recommendations on how the state might alter existing programs and systems to better serve children.

  • Private Coverage Under California’s Affordable Care Act: How Will Children with Special Health Care Needs Fare?

    High-end “platinum” coverage or basic catastrophic? In just a few months, many families of children with special health care needs must choose their level of health care coverage for 2014 under the Covered California Health Benefit Exchange. To make informed decisions, families will need to understand the benefits and markedly different cost-sharing requirements of the various products to be offered under the exchange plan. In this issue brief, Peggy McManus and Harriette Fox, of The National Alliance to Advance Adolescent Health, assesses the strengths and weaknesses of the proposed plan, and notes issues of particular concern for families of children with some special health care needs.

  • Habilitative Services Under the ACA: What States Should Consider

    Habilitative services, which help a person keep, learn or improve skills and functioning for daily living, are essential for many children with special health care needs. Under the Affordable Care Act, states will play a primary role in determining which services are covered. This paper outlines key factors states should keep in mind as they make their decisions.

  • Habilitative Services Coverage for Children Under the Essential Health Benefit Provisions of the Affordable Care Act

    Sara Rosenbaum, the Harold and Jane Hirsh Professor of Health Law and Policy at the George Washington University School of Public Health and Health Services, analyzes how habilitative services may be covered under the Essential Health Benefits Provisions of the Affordable Care Act.  The author notes that states will play a primary role in determining Essential Health Benefits, and that establishing state standards for health insurance plans sold in the individual and small group markets will be key to health policy for children with disabilities.

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