• A Review of the Literature Pertaining to Family-Centered Care for Children with Special Health Care Needs

    For children with special health care needs, ideal health services must be grounded in "family-centered care," which includes the planning, organization and delivery of health care that involves a partnership between families, patients and providers. Such care meets the physical emotional, developmental, and social needs of children, and also supports the family's relationship with the child's health care providers and recognizes the family's customs and values. This new literature review provides an overview of findings from selected research on family-centered care for CSHCN. It examines what has been learned about the problems families face in having their needs met, and how high-quality family-centered care might be developed and implemented.

  • The Missing Piece: Medical Homes for California’s Children with Medical Complexity

    Children with Medical Complexity (CMC) make up a small but costly subgroup among children with special health care needs, and their numbers are growing. This report analyzes the efforts of 11 California medical centers to develop complex care clinics capable of delivering comprehensive, quality care to CMC in a medical home setting. The report outlines the key challenges to developing these clinics and recommends strengthening their support and expanding their partnerships to develop regional models of care.

  • Care Coordination for California's Children and Youth with Special Health Care Needs: Building Blocks from other States

    Care coordination is critical for linking children with special health care need and their families to needed medical, developmental, behavioral, educational, and social services, and for providing logistical assistance and emotional support. This report outlines the key components of an effective, sustainable care coordination system, examines approaches to care coordination in six states other than California, and offers considerations for options in California's unique environment.

  • It Takes A Family: An Analysis of Family Participation in Policymaking for Public Programs Serving Children with Special Health Care Needs in California

    California’s uncoordinated system of care for children with special health care needs often creates significant difficulties for families, yet family voices are generally absent from policymaking. A new report documents the level of family participation in decision-making processes for organizations that influence the health and well-being of their children.

  • Children with Special Health Care Needs and Managed Care: Approaches from Three States

    For families of children with special health care needs, the idea of managed care can be worrisome. Families fear that in the interest of cost savings and maximizing profits health plans will limit their children's care. A new study by the National Academy for State Health Policy, supported by the Lucile Packard Foundation for Children’s Health, examines how three states, including California, try to ensure that children with special health care needs are identified in managed care organizations and that their needs are assessed and appropriate care provided. The authors propose promising practices that states could adopt to meet the requirements of this population of children.

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