• Event and Webinar Recaps

    Paid Family Caregiving for Children with Medical Complexity and Disabilities

    Pediatric home health care is in crisis. Children with medical complexity require a substantial amount of medical care and activities-of-daily-living support to live at home. However, due to a shrinking pool of available home health care workers and narrow state eligibility requirements for services, most of their care is increasingly delivered by families without pay. In response, the option to pay family caregivers for their children’s medical labor is gaining national traction. This webinar provided a brief overview of laws that govern care for this population and specific models of paid family caregiving, and how they have been recently expanded in several states. Speakers explored a policy solution to pay families to provide home health care to their children with medical complexity and disabilities.

  • Event and Webinar Recaps

    Health Systems Strategies that Prioritize Children with Health Complexity

    Health complexity is a concept that considers both a child’s medical and social complexity. For health systems, identifying and supporting children with health complexity directly aligns with efforts to eliminate health disparities. This webinar described how health systems can identify children with health complexity and provided actionable strategies and models to use this information to improve services and supports for families. Presenters shared real world examples and recommendations based on technical assistance provided to State Medicaid and Children’s Health Insurance Program (CHIP) agencies and health systems over the last five years. Additionally, a panel of health system leaders who have received technical assistance shared their reflections and learnings.

  • Event and Webinar Recaps

    Proceedings from the National Forum on Care Coordination for CYSHCN

    The National Academy for State Health Policy convened a national forum  to discuss innovations, strategies, and opportunities to improve high-quality, equitable care coordination for children and youth with special health care needs, with particular focus on integrated care and the care coordination workforce.

  • Event and Webinar Recaps

    A Conversation on Moving from Spending to Investment: A Research Agenda for Improving Health Care Financing for Children and Youth with Special Health Care Needs

    In this webinar, authors discuss their article, titled Moving from Spending to Investment: A Research Agenda for Improving Health Care Financing for Children and Youth With Special Health Care Needs. Speakers describe their study's findings, and present potential research topics to address the gaps in investing in children’s health.

  • Event and Webinar Recaps

    Pediatric Complex Care Seminar Session 10: Patient Engagement in Clinical Research

    This is the final seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Cara Coleman, Dr. Peter Rosenbaum, and Treeby Brown discuss patient engagement in clinical research.

  • Event and Webinar Recaps

    Pediatric Complex Care Seminar Session 9: Aspiration

    This is the ninth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Kathy McClelland, Katy Peck, and Dr. Christpher Russell discuss aspiration in the care of children with medical complexity.

  • Event and Webinar Recaps

    Pediatric Complex Care Seminar Session 8: Sleep

    This is the eighth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Kate Robinson of Family Voices will be joined by Kate Holler, Sarah Perkins, Dr. Caroline Okorie, and Dr. Shelly Weiss to discuss sleep.

  • Event and Webinar Recaps

    Pediatric Complex Care Seminar Session 7: Polypharmacy

    This is the seventh seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Dr. Eyal Cohen will be joined by Sarah Carlson, Kasey Dudley, Dr. James Feinstein, and Luke Orth to discuss polypharmacy.

  • Event and Webinar Recaps

    Pediatric Complex Care Seminar Session 6: Disorders of Tone

    This is the sixth seminar of the 10-part Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities (CMC) and Disabilities (C6) seminar series. Co-leads Dr. Eyal Cohen and Dr. Catherine Diskin will be joined by Dr. Laurie Glader, Dr. Nathan Rosenberg, Maureen Benschoter, and Sarah Perkins to discuss disorders of tone.

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