• Event and Webinar Recaps

    A Conversation on Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions

    While self-management support has been a component of adult chronic care for decades, it is just emerging as a critical need for children, especially those with complex conditions. Self-management is a shared undertaking between the child, their parents and care providers, and must take into account the child’s developmental status and the family’s capacities. Clinicians need routine, standardized approaches and tools to address the unique needs of children and their families including assessing self-management skills, collaboratively setting goals, and promoting competence and autonomy in youth. 

  • Event and Webinar Recaps

    A Conversation on Care Coordination for Children with Medical Complexity: Whose Care Is It, Anyway?

    Care coordination is an important approach to addressing the fragmented care that children with medical complexity often encounter. What are optimal care coordination services? How does care coordination intersect with care integration and case management? Learn best practices and how to implement a process that will achieve improved outcomes and value for children with special health care needs and their families. 

  • Event and Webinar Recaps

    A Conversation on Meaningful Family Engagement, from Clinical Care to Health Policy

    Engaging with families is vital to transforming the health care system and positively impacting the life course of vulnerable populations. Families have extensive experience in partnering with professionals to improve systems of care, are organized and connected across the country, and stand ready to assist at every level of next efforts for improvement. Learn how to meaningfully involve families at every level of health care systems and engage them as critical partners in designing policies that will improve care for all children.

  • Event and Webinar Recaps

    A Conversation on the Emergence of Pediatric Complex Care

    Care coordination is an important approach to addressing the fragmented care that children with medical complexity often encounter. What are optimal care coordination services? How does care coordination intersect with care integration and case management? Learn best practices and how to implement a process that will achieve improved outcomes and value for children with special health care needs and their families. 

  • Event and Webinar Recaps

    Measuring Family Experience of Care Integration to Improve Care Delivery

    The family perception of care integration is essential in identifying opportunities to improve processes of care coordination and care management. This webinar introduced a tool developed at Boston Children’s Hospital to measure how families experience integration of care for their children with special health care needs.

  • Event and Webinar Recaps

    Beyond Checklists: Care Planning for Children with Special Health Care Needs

    What does it take to create and implement an effective, family-centered plan of care for a child with special health care needs? Two expert speakers discussed their approaches to the process of care planning in two very different settings—Children's Hospital of Philadelphia and a small private practice in Vermont.

  • Event and Webinar Recaps

    Coordinating Care for Children with Social Complexity

    The lives of children with chronic or complex medical conditions often are complicated by psychosocial issues and family problems such as poverty, poor parental health, substance abuse, domestic violence, and homelessness. This webinar highlighted advances in research and practice that aim to improve the well-being and health outcomes of these children with "social complexity" while reducing costs.

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